alzheimers news-i want to see too

ALZHEIMERS NEWS-I WANT TO SEE

this is the video of the episode called the master of the mind on 60 minutes from this weekend
several folks sent me a message about it
i will admit as i was watching it yesterday 
well
i cried real tears
and
got chills and chill bumps
and
since i watched it right before i did my afternoon nap 
i couldnt hardly go to sleep
i did
but it wasnt a restful sleep

as i worked in my garden by myself for a couple of hours 
i did a lot of thinking about all of this


this is a photo from the cbs news 60 minutes episode called master of the mind

before i started aduhelm or aducanumab in 2016 my amyloid pet scan looked like this
probably not as much since from what i  could tell im not as far along as those who were in the study that the program was about
but still my scan was reported as being positive

if you watch the episode
if you are anywhere near the alzheimers world you should take the time to watch the video
it will give you some hope for where treatment is heading
you will see them show the original amyloid pet scan with all that red stuff
which is amyloid plaque
the plaques are part of what causes alzheimers disease
then
they show the amyloid plaques all that red stuff has been blasted away by opening up the blood brain barrier with ultrasound on a specific area of the brain after receiving an infusion of aduhelm or aducanumab

on the follow up amyloid scan you even you non medical people can easily see the plaques are gone

when they showed that follow up amyloid pet scan 
well
thats when i lost it and started crying

i even said out loud to myself
i 
want
to 
see

what i meant was i want to see my amyloid pet scans
all 5 or 6 of them
i want to know
where i am at

i am not allowed to see my scans though since they are protected from viewing
i have though requested i get to see them after the study is concluded

now i received 35 infusions of aduhelm or aducanumab over 35 months
over that time the aduhelm or aducanumab should have removed all of the measurable plaque from my brain

so if i could see my last amyloid pet scan done this summer
it would look like the one they showed on the big ole screen after the patients got the ultrasound blast and the aduhelm or aducanumab
the area that was spot treated showed all of the plaque was gone on the scan

on my scan it should show that all the amyloid plaque throughout my brain is gone ie none could be measured
if i could line all my scans up in a row you could see the progression of the removal of the amyloid plaques

there was some hope since the one patients wife noticed he had not gotten worse since he was treated and had improved slightly

thats what i am hoping with my treatment
that i dont get worse and maybe improve

seeing it on the screen like they should make it more real

yes
i want to see too

the organicgreen doctor