that is me talking at our family reunion a few years ago
my mother had died a few years before this
my younger brother was diagnosed not long before this
he was in a long term care facility at that time but was always came to our family reunions
sadly most of those in the audience are at risk for developing alzheimers disease as they age
almost all 50 of them
how healthy they live their lives will determine if they have the same fate as my mother my younger brother probably my dad and me
however
maybe someone out there in that audience that day could be the first survivor of alzheimers
with the advancements that are happening in possible treatments it will be reachable to those younger ones in my kinfolk audience that day
i would like it to be me
the first in my family
and
then others could be 2nd 3rd 4th ...
at the walk to end alzheimers the last several years they have a white flower they show
i have to carry the blue one for those with the disease
although i could also carry the purple one for those who have a loved one with or who died from alzheimers and the orange one for supporters of a world without alzheimers
yep i could hold a bouquet of those alzheimers flowers
the white one would make the bouquet look better
the white flower is for the first survivor of alzheimers
they usually have a child carry it during the opening ceremonies
once here in santa barbara they wanted ms b to carry it
at that time she was around 3
i wasnt sure i could handle her carrying that white flower around
i would cry while i was doing my talk the whole time she carried it
i joked i wanted to be the one to carry that flower
but they made sure i didnt
but
could i be that person
i seemed to have slowed it down by doing all the healthy stuff you are suppose to do and taking aricept or donepezil real early in my diagnosis and now taking aduhelm to remove all the amyloid in my brain
but is that enough to make me the first survivor
maybe i can dream right
i got my mri of the brain results back from my mri this week
since december my brain has shrank some
that usually means that the alzheimers is advancing faster
however
they have found when you remove all the amyloid plaques from the brain
my amyloid plaques should all be gone now
the brain shrinks
its like removing fat from you belly
your belly size shrinks
so
maybe in my case thats not a bad thing
i wonder if my garden hat will still fit
ill have at least two more mris over the next year to compare it to
the mri is the only test i have done in the clinical trial that i get an official report on
below is a video put out by the alzheimers association on the first survivor
is the first one out there somewhere
i say yes
he is in santa barbara
i wish
the organicgreen doctor
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