my story revisited #139-its still a sad song

MY STORY REVISITED #139-ITS STILL A SAD SONG 

this song in the video in the blog i wrote in 2014 triggered a lot of emotion this am
in the video as the song is sung that elderly lady ms youngs mom reminds me of my mom as she went through the later stages of her alzheimers journey
it also triggers memories of my younger brothers journey down that same path

when will i be there
im not sure
but
ive realized i need to enjoy each day moving forward while i am cognitively intact

yes
i teared up watching the video below
just like i did in 2014 when she sent me the link to watch the video

it for me was thought provoking today
__________
06-20-2014
A SAD SONG
about 2 years ago the alzheimers disease center at ut southwestern made
a video of my story with possible alzheimers disease
you can click here
or above on the blog page on
video on my story with alzheimers disease
and then
a newspaper article in the austin american statesman on
my story with possible alzheimers disease was published.
click here or above on the blog page on
newspaper article on my story

this video and article went nationally and i received a lot of emails and comments
and facebook hits because of it

one of the persons who has been in contact with me since is
dawn young a producer from new york

her mother and grandmother had or have alzheimers disease
she is presently working on a documentary on alzheimers disease

her music video called
who i am
recently won several awards

if you have a family member or friend who has had or has
this terrible disease
alzheimers disease
if you havent yet you will

then click on this music video
watch the video and listen to the music

i found memories of my mom dad and brother joe flooding back
and
of course ive cried every time ive watched and listened to this video

or
click here for the link
who i am video


MY NEW FACEBOOK PAGE
here is the link to my new facebook page
_________
my next aduhelm or aducanumab infusion is next tuesday at ucla
the following tuesday i have a tau protein pet scan to see where the tau tangles are at in my brain
where they are accumulating in the brain will be where i have my first symptoms
eg
if its in the frontal lobe i may start having behavior problems first
if its in the speech area i may start having problem with speech

i could almost then predict what will show up first

since i cant see the results of the scans i just have to wait and wonder what will show up first
hoping its not the bad stuff

then in about 3 weeks i get another mri to make sure i am not having microbleeds

i had an ocular migraine in 2010 that lasted 30 minutes 
it was associated with a wavy almost like a silver streamer in my right visual field that starts small and spreads across about 60% of my visual field
i also have a residual headache thats relieved with acetaminophen 
i feel washed out for a day afterwards

my next one was about a year ago that was stronger and lasted longer
i was alone as my wife she was out of town
i almost called 911 to take me to the emergency room since i couldnt drive
these can also be a tia or stroke starting up
however
i figured it was an ocular migraine so i waited to see if it resolved
i also contacted the research director for the study a ucla neurologist who felt it was an ocular migraine since i had one before 
that was 12 years ago when i had my first one
this one was my second one

i also saw my private neurologist who also felt like it was an ocular migraine

i had never had these before 2010
my next one was 2021 as described above

now i am having them on an almost weekly basis
all my mris have been normal

last week i was working in the garden when it started 
i continued to work until it resolved
it was the mildest i have had

my concern and i voiced this to the research neurologist is that this was due to my receiving my aduhelm infusions since they have seemed to increase in numbers since i was boosted to the full dose of aduhelm at 10mg/kgm

we cant be sure its causing them
i might have to make a decision on what to do based on how i do with these ocular migraines

this one this week left me with headaches and fatigue and nausea for one day

i also have an appointment soon with my private neurologist and will discuss the ocular migraines

its possible if this is from the aduhelm that they will resolve

other neurology symptoms noticed in the study subjects receiving aduhelm had their symptoms resolve gradually and are able to continue the meds

im hoping this is what happens with me

the organicgreen doctor