yesterday i was contacted about doing an interview with bloomberg news next week about my involvement in the biogen aduhelm clinical trial and my thoughts on the approval of aduhelm or aducanumab for treatment of alzheimers disease
a quick review
i have had 34 infusions in biogens aducanumab clinical trials
some were done at ut southwestern in dallas and the rest have been done at ucla
i received as it turned out 18 months of placebo and have now received 15 monthly infusions of the real drug aduhelm or aducanumab
i will receive at least another approximately 18 more infusions but the study will likely be extended long term
its my diagnosis and my involvement with the aduhelm studies that these interviewers are interested in
recently i was interviewed by the financial times about all this
the article should be published in a couple of weeks
a 30-40 minute interviewed will probably be reduced to about 2-3 paragraphs
i am always concerned when they do that since that can sometimes make you seem to say things you really didnt say
but usually these folks are good at what they do
so yesterday this made me think about all the interviews i have done over the last 12 years since i was diagnosed
the one interview that stands out was my first one
it was by mary ann roser from the austin american statesman in 2011
she is an experienced writer who was thorough
she interviewed me for 3 hours at my house at the country n
she also interviewed my wife she the nurse who worked with me when i retired the office manager at the clinic i worked at the alzheimers organizations and several well known alzheimers researchers
she then wrote a lengthy several page article that was very well done
it was picked up by the associated press and was published at papers across the us
i had several friends and patients who contacted me letting me know it was in their local paper
the author and i still communicate with each other
they interviewed me several times afterwards
here is the link to the article
titled retired doctor tries to make the most of living with possibility of alzheimers disease
the ut southwestern alzheimers center had a video done about my story
it has been nominated for awards
it was very well done
they interviewed my wife she and me for about 3 hours at our country n
i was also interviewed at the alzheimers center for a couple of hours
the final video above was produced and has been viewed hundreds of times
some were done at ut southwestern in dallas and the rest have been done at ucla
i received as it turned out 18 months of placebo and have now received 15 monthly infusions of the real drug aduhelm or aducanumab
i will receive at least another approximately 18 more infusions but the study will likely be extended long term
its my diagnosis and my involvement with the aduhelm studies that these interviewers are interested in
recently i was interviewed by the financial times about all this
the article should be published in a couple of weeks
a 30-40 minute interviewed will probably be reduced to about 2-3 paragraphs
i am always concerned when they do that since that can sometimes make you seem to say things you really didnt say
but usually these folks are good at what they do
so yesterday this made me think about all the interviews i have done over the last 12 years since i was diagnosed
the one interview that stands out was my first one
it was by mary ann roser from the austin american statesman in 2011
she is an experienced writer who was thorough
she interviewed me for 3 hours at my house at the country n
she also interviewed my wife she the nurse who worked with me when i retired the office manager at the clinic i worked at the alzheimers organizations and several well known alzheimers researchers
she then wrote a lengthy several page article that was very well done
it was picked up by the associated press and was published at papers across the us
i had several friends and patients who contacted me letting me know it was in their local paper
the author and i still communicate with each other
they interviewed me several times afterwards
here is the link to the article
titled retired doctor tries to make the most of living with possibility of alzheimers disease
the ut southwestern alzheimers center had a video done about my story
it has been nominated for awards
it was very well done
they interviewed my wife she and me for about 3 hours at our country n
i was also interviewed at the alzheimers center for a couple of hours
the final video above was produced and has been viewed hundreds of times
the ut southwestern alzheimers center also did a well done interview with me and my medical providers for publishing in their quarterly newsletter
the article titled from physician to advocate is linked here
its starts on page two
i ;remember that picture
i am standing in the memory interview room where i sat that first day doing my neuropsychological exam
i sat there not able to answer some of the questions
i looked out that window which the blinds were opened on and got cold and sweaty
since
i knew that my time had arrived
i knew at that moment i had alzheimers
it took a few months of memory testing and labs and mri scans and amyloid pet scans and spinal taps to solidify the diagnosis
but
it was at that moment i knew
i didnt need all those tests
i knew
i thought
im done
thats when i made my decision to stop practicing
looking out that window in mid memory testing
another of my good interviews was actually by a reporter for a small town at that time now its much larger paper called the liberty hill independent
she was actually a well experienced writer
the article titled from physician to advocate is linked here
its starts on page two
i ;remember that picture
i am standing in the memory interview room where i sat that first day doing my neuropsychological exam
i sat there not able to answer some of the questions
i looked out that window which the blinds were opened on and got cold and sweaty
since
i knew that my time had arrived
i knew at that moment i had alzheimers
it took a few months of memory testing and labs and mri scans and amyloid pet scans and spinal taps to solidify the diagnosis
but
it was at that moment i knew
i didnt need all those tests
i knew
i thought
im done
thats when i made my decision to stop practicing
looking out that window in mid memory testing
she was actually a well experienced writer
the article was about volunteering with a lot of it on my journey with my diagnosis
the interview was about an hour long
she also took this photo
the interview took place at the gardens attached to the local library
here is the link to the liberty hill independent article
titiled diagnosis alters doctors path but not his passion for helping
newspress
here in santa barbara the local newspaper has interviewed me twice since i have lived here
once on my diagnosis and the local alzheimers walk and another time on my thoughts on the aduhelm use in treating alzheimers and my involvement in the aduhelm research study
here is the most recent article from the local paper
the interview was about an hour long
she also took this photo
the interview took place at the gardens attached to the local library
here is the link to the liberty hill independent article
titiled diagnosis alters doctors path but not his passion for helping
newspress
here in santa barbara the local newspaper has interviewed me twice since i have lived here
once on my diagnosis and the local alzheimers walk and another time on my thoughts on the aduhelm use in treating alzheimers and my involvement in the aduhelm research study
here is the most recent article from the local paper
titled hope for alzheimers
i did a phone interview then later another reporter came to our condo and took pictures and did a short video interview
recently a few months ago i was contacted by the website being patient asking if they could do an interview with me about my diagnosis and my involvement with the aduhelm research study
the interview took about a hour and is linked here
titled some hope over no hope a retired doctor on alzheimers diagnosis and aduhelm trial
at the bottom of the written interview is the video version
they also interviewed me prior to this interview
this website being patient is a good one to follow to help keep up with whats going on in the alzheimers world
the owner deborah kaen is a caregiver for her mom with alzheimers disease
she is living the caregiving role now
her being patient link is on my favorite blogs list
new york times
then last year the new york times called and wanted to interview me about my involvement in the aduhelm research study
i was interviewed for about an hour
later a photographer came and took lots of pictures here at the condo and in my community garden
she was a good interviewer and it was obvious that she knew the subject she was writing about
the one hour was condensed to just a few paragraphs and photos
here is the link to the new york times article
titled alzheimers drug poses a dilemma for the fda
i have done several tv interviews usually associated with the alzheimers walks i was involved with here and in texas
i have had several high school and college students contact me for either written interviews or phone interviews about alzheimers and my diagnosis and my involvement in the alzheimers clinical trials
i enjoy these interviews the most
these interviews have led to more readership for my blog and to more contact with folks across the us asking questions about alzheimers disease
most are looking for hope of some kind
hope may be hard to find in the alzheimers world
i did a phone interview then later another reporter came to our condo and took pictures and did a short video interview
recently a few months ago i was contacted by the website being patient asking if they could do an interview with me about my diagnosis and my involvement with the aduhelm research study
the interview took about a hour and is linked here
titled some hope over no hope a retired doctor on alzheimers diagnosis and aduhelm trial
at the bottom of the written interview is the video version
they also interviewed me prior to this interview
this website being patient is a good one to follow to help keep up with whats going on in the alzheimers world
the owner deborah kaen is a caregiver for her mom with alzheimers disease
she is living the caregiving role now
her being patient link is on my favorite blogs list
then last year the new york times called and wanted to interview me about my involvement in the aduhelm research study
i was interviewed for about an hour
later a photographer came and took lots of pictures here at the condo and in my community garden
she was a good interviewer and it was obvious that she knew the subject she was writing about
the one hour was condensed to just a few paragraphs and photos
here is the link to the new york times article
titled alzheimers drug poses a dilemma for the fda
i have done several tv interviews usually associated with the alzheimers walks i was involved with here and in texas
i have had several high school and college students contact me for either written interviews or phone interviews about alzheimers and my diagnosis and my involvement in the alzheimers clinical trials
i enjoy these interviews the most
these interviews have led to more readership for my blog and to more contact with folks across the us asking questions about alzheimers disease
most are looking for hope of some kind
hope may be hard to find in the alzheimers world
but
when we find it we try to savor the moment
an update
i had my aduhelm infusion this week at ucla
so far so good
i have a mri in two weeks looking for any microbleeds
i have no symptoms
i will have a tau protein pet scan in about 6 weeks to see if the tau tangles have dissolved some in my brain
later this year i will have another amyloid pet scan to see if the amyloid is being removed
i sure wish i could see what the scans looked like
my next infusion is in one month
hope it works
the organicgreen doctor
an update
i had my aduhelm infusion this week at ucla
so far so good
i have a mri in two weeks looking for any microbleeds
i have no symptoms
i will have a tau protein pet scan in about 6 weeks to see if the tau tangles have dissolved some in my brain
later this year i will have another amyloid pet scan to see if the amyloid is being removed
i sure wish i could see what the scans looked like
my next infusion is in one month
hope it works
the organicgreen doctor
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