when my mother was diagnosed with alzheimers disease i started reading up on alzheimers disease
i realized how much i didnt know about it
then
my younger brother was diagnosed with alzheimers disease in his mid fifties
it hit him after he had retired as a fireman and had started a second career as a deputy sheriff
when he was diagnosed that made me even spend more time reading about alzheimers disease and what i could do to keep from getting it myself
then
in 2011 i was diagnosed with mild cognitive impairment due to alzheimers disease
when i was diagnosed i spent a lot of time researching alzheimers disease to come up with a plan for me to follow
i also did presentations on my story talking about alzheimers disease and what ive done and what others need to do to slow things down
i also once was asked to do a talk on the different dementias for a medical seminar
this helped me understand the difference between the different other types of dementias
if you have a loved one or friend or even yourself i think its important to know and understand what we know about alzheimers disease in 2019
knowledge of your disease is important for you as you seek care for your disease
this week in one of my alzheimers newsfeeds a video came through from the university of california san francisco memory care center
if you want to know about alzheimers disease
what types of alzheimers are there
what happens in the brain with alzheimers
listen to lay folks ask their questions they want answers to after they listened to the presentation
these are the parts of my presentations i do that i like the best
when folks get to ask the questions they want answers to
the main speaker does a good job of giving a talk that lay people can understand
i use to try to do that when i spoke to patients
eg
some doctors would say well you have labyrinthitis
i would say you have vertigo
we all know what vertigo is
one of the things they discussed were visual spacial problems folks with this type of alzheimers disease have
some of the visual spatial issues can occur years before the full blown disease hits
this is something i have noticed in the past and even now
eg
i have had problems finding things that are on the shelf in our cabinets
its sitting there right in front of my eyes
he talks about this and why it happens
he does an excellent job of explaining the genetic components of alzheimers disease
especially the apoe 4 gene
he explains the four types of alzheimers disease
the one we think of when we think of alzheimers disease is the most common one
he explains what happens with amyloid and then the tau proteins and how they are involved in this disease
if you want to know more about alzheimers disease i would highly recommend this video
its lengthy but its very educational
i learned several things i didnt know
it also reinforced what i do know about alzheimers
if you have a loved one with this disease and you want to know whats going on in the brain
watch this video
on october 10th i will be part of an alzheimers panel at valley presbyterian hospital in van nuys as part of an early memory loss panel sponsored by the alzheimers greater la
on october 18th my wife she and i will be attending a ucla luncheon for alzheiemers research participants where we might learn what happened with the aducanumab study
on november 8th i will be on an alzheimers panel answering questions after the showing of the documentary turning point at the jeff bridges auditorium at ucla
then our walk is below
also join and or donate to our teams for the walk to end alzheimers or join an alzheimers walk in your area
our walk to end alzheimers team organicgreendoctor will be walking in the walk here in santa barbara on saturday november 2 2019
i was diagnosed at the age of 60
here is the link to my team and the walk
my younger brothers team #team joe nash will be walking in the el dorado arkansas walk to end alzheimers on saturday september 14 2019
he died 6 years ago in the final stage of alzheimers disease
he was diagnosed at the age of 55
here is the link to his team and the walk
the organicgreendoctor blog
I was diagnosed in 2013 with early on-set Alzheimer's, and through a more recent COBRE Study, I was diagnosed with Mild Cognitive Impairment. I, too, cannot find things that are right in front of my eyes. I, too, have trouble with visual spacial problems and balance and ... Well, to combat such a diagnosis, I've thrown myself into writing and speaking publicly about my experience to help others live each day better for as long as possible. I will listen to this video. Thank you.
ReplyDeletei hope you like the video. i found it to be one of the better ones to explain what happens with this disease in the brain. wishing you the best with your journey.
ReplyDeletetogd