alzheimers news-ptcgsd

ALZHEIMERS NEWS-PTCGSD

we all know what ptsd stands for
post traumatic stress disorder

well
ptcgsd stands for post traumatic caregivers stress disorder

if you want to know what its like to have this caregiver disorder that i have called
ptcgsd
then
take the time to read this latest blog by karen garner a wife mother excaregiver of an early onset alzheimers husband who died almost 3 years ago

i followed her blog for close to 5 years
it oozed with pain and with love

he a late 40s early 50s dad
healthy athletic military guy
struck at this young age with the disease we expect to see only in older folks
he with a young wife and two young kids

i started reading her blog not long after i was diagnosed
it was painful to read
all i could think was im not far behind him am i

he continue to worsen
all the grief she laid out for all of us to read see and feel

i somehow feel guilty at times when i think of him and her and their family and i think of my younger brother and his family and how he was struck so young also
its just not fair

i feel like i have had a reprieve that i wasnt expecting
but i am glad and gracious to have been given

is it fate
is it my healthy living
is it my medicine
is it this monthly infusion i am receiving now for two years
i dont know
but
although i do feel guilty sometimes
its this guilt and wanting to see my family age that motivates me

so
if you want to know what post traumatic caregivers stress disorder is like
take the time to click here on her last blog
read it
then
you will understand what those caregivers are going through when its all over with
well
its never all over with
is it
it stays with them forever

please dont forget them

when its my wife she and my families time
remember them

here is the link to karen garners latest missing jim confessions of an alzheimers wife blog
called
missing jim continues

warning
if you read through her last 5 years of blogs you will need a larger box of kleenex


update
i received my for sure not placebo aducanumab infusion #3 yesterday
combine that with what i think was not placebo infusions before
then i am closing in on a full two years of infusions of this experimental drug that may slow down the disease some

lets put disease off as long as we can

the organicgreen doctor