alzheimers news-update and more

ALZHEIMERS NEWS-UPDATE AND MORE

i am now 8 days post infusion
having received the first aducanumab infusion
well i might have got the placebo instead
eventually ill find out which i got

for those who dont know what aducanumab is
its an antibody against the bad beta amyloid
that is thought to be the cause of alzheimers disease
at least based on the amyloid theory

the antibody binds the amyloid and removes it from the brain
if it works the scans for the amyloid is clear
the memory gets better

the two symptoms i have noticed so far
are
a low grade headache that i occasionally have to take acetaminophen
to relieve
fatigue that worsens as the day goes on
both
i can live with

now i have a low grade iritis an inflammation of the iris of the
eye
that also can cause these symptoms
i control it with daily steroid eye drops
however
i dont think this is a flare of my iritis

heres hoping my headaches and fatigue continue
it could be that i am getting the real medicine and not
the placebo
i sure hope so
i dont want to lose 18 months of treatment until
all of us in the study get offered the read deal aducanumab


i have been following
karen garner
in her blog called
missing jim confessions of an alzheimers wife

jim died over a year ago
she occasionally blogs to let us know how she is doing

i suggest you click on the above link
to get the feel of what its like to deal with a loved one
with this disease
even a year after their death

i am afraid folks that this diseases effects on caregivers
and loved ones
never ever go away
her blog still oozes with sadness
she is one of thousands so affected


then
last week
now i have thought about this a lot
since i was diagnosed
it was even a segment on the alzheimers movie still alice

someone with the disease
reaching that point
i sitting here today can see where that point is
but
like in the movie still alice
when that point arrives
you are usually to gone upstairs
to carry it through

here is the link to article on how a husband of an alzheimers patient
recognized when she reached that point

was is he guilty

i say yes and no


then
you know when someones heart fails to work anymore
its called heart failure

when someones kidneys quit working
its called kidney failure
now
when someones alzheimers disease advances
its called brain failure

thats what alzheimers disease is and leads to

brain failure

the organicgreen doctor