did you know that
i have an appointment on february 28th to have my
amyvid pet scan
this scan will show if i do or if i dont have alzheimers disease
if its positive
i probably have alzheimers disease
remember nothing in medicine is 100%
i will be in the study called the
aducanumab study by biogen
i soon after would start monthly iv infusions of the drug
aducanumab an antibody against beta amyloid
if i then get the real thing and not the placebo
my scan in a year will go from brightly positive
to brightly not positive
hoping that it correlates with an improvement in memory
the results should be out in over 18 months
so we will know
if it looks like it works i plan on continuing the
extension of the study for another 36+ months
if it works
i will not want to get off it
my thoughts are that this stuff only works if you get
to the disease sooner even sooner than where i am at now
it will work best probably if used before symptoms start
now if its negative this scan
i got one helluva reprieve
its like being told you dont have terminal cancer after all
did you know that
in texas you can sign up to be monitored starting at 50 years old
at no cost
baylor at houston texas tech university of north texas
ut southwestern dallas university of texas san antonio
these universities are part of a long term study that will do
labs memory tests neurological exams and maybe mri
annually
here is the link to find out more
www.txalzresearch.org
here is the link to where i go
alzheimers disease center ut southwestern
if you have time watch the video my wife she and i
did for the center thats on that page
did you know that
learning a second language early in life decreases your chance
of developing alzheimers disease
these folks develop a brain reserve from using certain parts
of the brain more over the years
you know that
afroamericans have a higher incidence of alzheimers disease
did you know that
by following the mind diet you can lower your chance of
developing alzheimers disease when you get older
heres the link to the mind diet
did you know that
controlling you blood pressure cholesterol weight diabetes
decreases your chance of alzheimers diease
did you know that
if you exercise regularly you can decrease your chances of
getting alzheimers disease
did you know that
poor sleep from insomnia sleep apnea restless legs etc can
increase your risk for alzheimers disease
did you know that
1 in 5 dollars of medicare is spent on alzheimers and other dementias
by 2050 that will go to 1 in 3 dollars
did you know that
smoking increases your risk of developing alzheimers disease
did you know that
head trauma can put you at risk for developing alzheimers disease
did you know that
if someone in your family has alzheimers disease then you are at
risk for developing it
did you know that
you can help find a cure and help others
by
becoming involved in your local walks to raise funds
go to the alzheimers association website www.alz.org
to find out where your walk is
there are also independent alzheimers organizations in some states
or
in central texas
go to the texas alzheimers website www.txalz.org
and or
write your congressperson to encourage them to support
funding of more alzheimers research
we can not afford to not do something to help
a treatment or cure is within our reach
possibly within my reach soon
help us help yourself help your family help others if you can
i will be speaking along with other alzheimers speakers at
the alzheimers symposium in temple texas
on
friday april 28 2017
my topic is my story and clinical studies
there is no fee and a light lunch is provided
here is the link to the symposium for more information
and for registration information
http://www.txalz.org/education/conferences/
the organicgreen doctor
No comments:
Post a Comment