it was with great interest
for myself for family members and for others
that i watched the nova pbs special wednesday night
on
can alzheimers be stopped
you can actually click on the title above to go to a link
where you can watch the show online
it was interesting that much of the show was about
what i was planning on talking about at my presentation
tomorrow at
first united methodist church
401 east university
georgetown texas
sponsored by alzheimers texas
i will be speaking at 900 am
here is the link to sign up for the talk
there are a few slots left
so
as i watched the show i kept saying to my wife she
thats what i am talking about this weekend
telling her what the speaker on the tv would say next
not sure she appreciated that much
the difference is that i am adding a personal twist to my talk
with my story
i am in research studies
awaiting approval to get into one of the studies discussed in
the show
what i have found is that i fall between the cracks
i am not consider normal so i dont qualify for the A4 studies
but
eg
my siblings do as do many of you
you just to have to be willing to know that you have
preclinical alzheimers by having an amyvid pet scan
well described in the tv show
that i think is what is holding folks back
knowing that they probably have it
i always tell folks when i do my talk
i usually pick someone out in the audience
mam
i could tell you that you have cancer would you want to know
and
if you have it i will offer you a treatment that may cure it
would you want to know
most folks always say of course
however
its not that way with alzheimers disease
the big A
its too scary
they just would rather not know
i personally dont understand
since i have begged to get into these studies
since
i know what the potential for me personally it is to start treatment
now
and
not wait for 5-10 years
for
then
it will probably too late for it to help much
it appears to work the best when started early
so i am waiting to hear if i get into the aducanumab study using
biogenes alzheimers vaccine via infusions
the problem for me
even though i have the diagnosis they are looking for
my memory has returned to normal for my age
so
there is a possibility i may not qualify
a real possibility
so
that i would have to wait until 2020 when the results of all these studies
come out to see if these new drugs actually work
then
wait for a unknown number of months and years before it gets approved
before i could be treated
sucks huh
so
my plan is if not accepted
to get my amyvid pet scan for the bad beta amyloid in the brain
to know
as much as possible do i have alzheimers disease
for then i would have had all the diagnostic tests available in 2016
to make a diagnosis
if its positive
i will continue to maximize my health to its fullest
stay on aricept (donepezil)
stay on my supplements and vitamins
until it the vaccine becomes available
that is
if it works like they think it will
if it doesnt
this will be a big set back for me and all those others hoping
for new treatment
then
ill keep writing hoping to do so like the writer in the film
documenting his path his journey down the
alzheimers slope
lets hope
this stuff works
so
we can stop it
the organicgreen doctor
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