the study, jopago ne

THE STUDY
the interview with a local dallas television station is cancelled
today so that all my wife she and i will be doing there is the
stuff we do for the adni study

the adni-2 (alzheimers disease neuroimaging intitiaitve) is a
5 year study of 4 groups
normal cognitive patients with no symptoms
early mild cognitive imparment patients with mild symptoms-thats the
group im in
late mild cognitive impairment patients with more advanced symptoms
full blown alzheimers disease patients

each patient has the same evaluations and are followed over the 5 years
of the study
this is an important alzheimers disease study-probably the most
important one that has been done
it will define how patients are diagnosed and probably treated and
how new biomarkers will be used to diagnose and mange
patients in the future

what i am having done in this study is probably what patients
across the us and the world will have done to evaluate them
for alzheimers disease in the future

there are important research papers being published every week
from data that has been collected from this study
each year over the next 5 years more and more information will
be available for doctors and patients to use
will keep you in touch with some of the findings as they occur

today i have to have fasting labs done
these tests some i dont know what they are include a biomarker
test for beta amyloid and tau protein that is being used to
diagnosis and follow the severity of a persons disease
in the future this is the test that your doctor may be using to help
make the diagnosis of alzheimers disease
probably before this study is over with
it help take some of the guessing out of making this diagnosis

i also am having that damn torture test-the neuropsych exam that
i hate to take
give me blood work or give be a spinal tap
thats my preference

you should try one sometime
why i dont like to take it is because i have done enough of these this
last year so i know which parts i cant do real well
its frustrating to not to be able to do these things that your
8 year old can do
thanks goodness im only mild now
know how frustrating it must be if or when i get worse
at least i dont have to do it again for 6 months then after that just
once a year

the next thing i have done is a volumetric mri
the one that sounds like youre inside a jet engine
at least it doesnt involve an iv this time

this volumetric mri is mainly looking for the volume of the hippocampus
which is affected first by alzheimers disease
the study uses a computer program to measure this volume so that
early changes can be detected
sadly i wont ever get the official reading of this scan as its part of the
study like the lab and the neuropsych exam where it enters the
black hole of the study for me to never see the results
its part of the deal of entering the study

soon your primary care doctor will be able to use this volumetric
mri along with neuropsych exams and other tests to help diagnose or
rule out alzheimers disease with more accuracy

dont mind it all
feel like im doing my contribution to finding a solution to this
problem-that terrible disease alzheimers

JOPAGO NE
well jopa is gone
agree with the decision
if the longhorns mack brown or razorbacks bobby patrino
(both teams are the ones i follow) had let this happen on their
watch then they should be let gone and not be allowed to
finish the season
telling your bosses in sexual abuse cases and not personally
reporting it to the legal authorities when nothing was done
about it is your responsibility
the finger was  pointing at him
he did not do the right thing
he needed to pay the price

if it was your 10 year son being abused am sure you would
agree with me

what a tragedy for everyone involved

ive had to report abuse myself when a patient told me about it
or if i found evidence of abuse
i broke that sacred patient doctor relationship that is so protected
by the ethical and legal system to do what was right

i simply walked out of the room and called the police or the
appropriate legal  person and reported the abuse
my responsibility was fulfilled
it was then up to the legal system to do what was right
many times they did not do their jobs well
then i made sure the victim the patient was properly cared for

thats what missing is all this debate right now
how traumatized those boys are and will be forever
no money or therapy will make it go away
how many of these cases could have been prevented
how many other times did this happen

so sad
for everyone involved

think of the victims in this
the abused boys, the penn state football players, penn state
students, the pennn state fans

the right thing is now being done
that abusive coach as we all know will get what he deserves
when goes to prison

the organicgreen doctor