adni-2, bb

ADNI-2
today i start my alzheimers research study called adni-2
alzheimers disease neuroimaging intiative-2 is an extension of
the adni-1 study

this study will look at normal controls (thats the category i was
going to be in when all this mess ive got my self into started)
(many of you know who have read my blogs know i entered this
study to be a normal control but flunked the initial
neuropsychological test in the short term memory department and
was not allowed in on the adni-1 study
from there a trip to the neurologist landed me on aricept and
a decision to stop my medical practice because of the fear of
causing harm)

other categories are early mild cognitive imparment-thats my group
late mild cognitive impairment and alzheimers disease

we will all be followed for 54 months with serial blood work,
neuropsychological test (thats the one that caught me and i
hate taking it. its like taking a test where you dont know the
material and you know you are going to flunk it. its like taking
a test you havent studied for and not knowing the answers. its like
a bad dream.  i dread it more than the spinal tap), spinal tap to
assess amyloid and tau protein-both are elevated in alzheimers-,
mris, a pet scan to look at radioactively labeled amyloid, and a
pet scan to look at radioactively labeled glucose which shows
how well the brain is actively functioning

these tests and data are sent to a central place usually ucla for
developing a data base that research will study sometimes for
years
sometimes a cell line is developed if a significant finding is made
maybe mine could be called the togd gene

also included in this study i will sign a permit that will allow an
autopsy of my brain when i die so they can compare what they
see in my brain at my death with what they saw on the scans and
neuropsychological tests
the final diagnosis of alzhiemers is made only on autopsy

will this study help me
no
but it may help my kids, grandkids, you or your family
remember you will be affected by this terrible disease in some way

there is no drug testing in this study
there is only the scans and lab studies that are not readily available
outside the research system

problem is ill never know what my results will be
as all the test subjects are identified by numbers and the results go
into this research black hole never to be seen by me or the other
people in the study

ill remain on my aricept until it doesnt work anymore
there has not been any worsening of my condition
i have gotten adjusted to my meds and have few side effects
have lost those great dreams i was having
guess ill have to get netflix now

tomorrow will blog on anything new after by intial visit
at least i dont have to repeat that dam neuropsych exam this time

BB
whoa
lakers dont get in trouble now
lose the next one and you are in trouble

spurs werent suppose to lose that game
watch out

celtics you are lucky that knicks played bad at the end
youve got a fight on your hands

thunder you are fun to watch
denver is going to give you a run for your money though

the organicgreen doctor