organicgreendoctor: it is time

organicgreendoctor: it is time: IT IS TIME that is what i want to do is end alzheimers however i am realistic since i know that i can not in 2026 end alzheimers  but i can ...

it is time

IT IS TIME


that is what i want to do is end alzheimers
however i am realistic since i know that i can not in 2026 end alzheimers 
but
i can slow it down
so
that is what i am trying to do is
slow it down some

for those who dont know my story i will review it

i was diagnosed with mild cognitive impairment that has turned out to be due to alzheimers disease

how do i know that

i had several neuropsychological memory tests that document that
the first was in 2010 when i applied to be in the adni 2 or alzheimers neuroimaging initiative 2
i was suppose to be in the normal control group but after my memory test i was placed in the mci or mild cognitive impairment group
i did this study for 5 years getting numerous memory tests lots of blood work a couple of spinal taps and several amyloid pet scans and several mris of the brain

during ths time i was being treated by a neurologists who placed me on aricept or donepezil did spinal fluid analysis for amyloid and tau and did genetic testing

my spinal fluid was compatible with alzheimers and my genetic testing showed i had the apoe4 apoe4 gene the late onset alzheimers gene

i maximized my health eating a mind diet controlling my cholesterol blood pressure weight and staying active mentally physically and social and all the other things should be doing

a quick review of what happens with alzheimers

amyloid plaque accumulates in the brain early on before symptoms start
this starts killing off brain cells
then
tau proteins in the damaged cells unwind and form tangles that kill more braincells
then
an inflammatory reaction occurs causing inflammation which kills more brain cells

this all starts 20 years before symptoms start

aduhelm and leqembi and kisunia remove the amyloid plaques
now
scientists are doing clinical trials which i dont qualify for to treat and remove the tau tangles and remove the inflammation

i have completed step one
my amyloid plaques are removed but they will return over time

after finishing the adni2 study i progressed to being in a clinical trial for aduhelm or aducanumab which removes the amyloid plaque from my brain
my initial amyloid pet scan was positive for amyloid

i received 18 monthly infusions of placebo then received a total of 34 monthly infusions of the drug aduhelm
at the end of the study my final amyloid pet scan was read as negative 

my diagnosis is solidified by having abnormal memory tests a positive spinal fluid and a positive amyloid pet scan
yes i have alzheimers

now what do i do now
there are treatments in clinical trials that will remove amyloid and remove tau proteins and treat inflammation but those may not be available for me for 5-10 years
thats too late for me

so what do i do now

there are probably 2000 of us in the world that has this problem
we received aduhelm which removed our amyloid plaque
now
what do we do

what i want to do is to start leqembi monthly maintenance infusions to keep the amyloid from reaccumulating in my brain
this may slow down the disease some

if i do nothing it will reaccumulate over the next 5-10 years and i will be back to where i was 16 years ago

removing the amyloid plaque reduces memory loss by 30% but the longer its used and the more its used in patients the better it seems to be working
plus the earlier you start it in the disease process the better it works
i was treated real early 

fingers crossed

so in 2 weeks i meet with a neurologist at Cedars Sinai in los angles to discuss all of this to see if i qualify to receive the leqembi infusions monthly
or
since leqembi is getting a self administered version you can use at home i would like to try eventually to get on this

i am at risk for brain bleeds since i am apoe4 apoe4 positive
our local neurologist wouldnt treat me because of this risk
she advised i go to a tertiary care center to get it done

i fear there will be a lot of red tape to go through to get this done
luckily the neurologist i am seeing was running the clinical trial on aduhelm that i was in

i really have no other options right now besides living healthy and taking my aricept

my last aduhelm infusion was almost 2 years ago
my last amyloid pet scan was almost 1 1/2 years ago

the good thing is my last moca memory test was normal in july 2025 as was my memory tests in 2024

it is time but i now have to wait to see whats next

the organicgreen doctor

organicgreendoctor: my story revisited #223-i hope they did

organicgreendoctor: my story revisited #223-i hope they did: MY STORY REVISITED #223-I HOPE THEY DID this is a picture from my first walk to end alzheimers in texas around 2011 i think the child a form...