followup on adni study(alzheimers study)

FOLLOWUP ON ADNI STUDY(ALZHEIMERS STUDY)
well went to the center for the initial evaluation for the
adni study
good thing was that i did not have to do a lumbar puncture
yesterday
bad thing is that when i go back i have to get it done

but after going through 3 1/2 hours of psychological,
neurological, and neuropsychological evaluations the
lumbar puncture doesnt seem quite so bad

was warned by testers that that is how most people
feel who go through the testing

after the complete evaluation is completed in a few weeks then
a decision will be made as to which arm of the study
i will be placed in
bad thing is that for the adni study have to go through the
neuropsychological evaluation again

the mri scan and lab work will also be done after the followup
evaluation probably next month

no matter whether i am placed in the adni study
i will have labs and a mri scan and a neuropsychological
evaluation annually for as long as i live
i will be able to receive those results when they are done

if i am placed in the adni study i will get more evaluations
over a 2 year period
much of the labs and scans that are done in the adni study
are experimental and are not done outside of research
you cant go to a local xray place and get the
scans done or to the lab and get the genetic studies done
these results will never be given to me

the testing done outside of the adni study-routine labs, mris,
neuropsychological evaluations- though are results
that i will receive after they are done and can be used to
plan my future

overall am glad that i went
hopefully i will be able to contribute a small bit of information
to fighting this disease

i will blog in the future  about each visit when i go

the organicgreen doctor